Everyone in Jaxson’s life is on the lookout for his different seizure types and their effects down to his younger sister Jaylee. Jennifer, his mom, braces him as he experiences a seizure, one of many to be had today. They were on their fourth visit of the Cannabidiol study in which they had no idea if Jaxson was on the drug derived from the non-psychoactive chemical in marijuana or on placebo. 

Jaxson's dad, Billy Huffman, gently lays him on the medical exam table before the head neurologist in the study at Cook Children's in Ft. Worth, Texas examines him. He can't hold himself upright or speak and his food must be pureed. 

The drug cannabidiol is derived from CBD oil, a non-psychoactive product of marijuana. It is kept behind many locked doors accessible only with an approved key-card, in an Omnicell vault alongside the most powerful narcotics in the pharmacy. It requires two approved pharmacy staff to scan their thumb print in order to open it. December 9, 2015.

The drug, derived from CBD oil a non-psychoactive product of marijuana, is kept in a thumb print access Omnicell vault along with the most powerful narcotics in the pharmacy. It requires two approved pharmacy staff to scan their thumb print in order to open it. December 9, 2015.

Rikki, 3,  must be monitored at all times, although he moves around and interacts with his family he experiences debilitating seizures all throughout the day. By around ten in the morning of December 14, 2015 Sandy, his mom, counted between 25 and 30 seizures of different varieties.

Sandy and Rikki spend most of their days in what she says is their “nest.” When he isn’t racked by seizures Sandy works with him on his motor skills, he plays with his favorite green ball and at his keyboard. December 14, 2015.

Ricky's dad works while his mom stays home and takes care of him. His income alone makes making ends meet difficult and they have had to move multiple times this year. 

Head bowed, muscles and joints tense, Rikki experiences a seizure in which he remains upright and retains consciousness in his south Ft. Worth home. The carpeted floor of his play area is covered with foam mats to make sure he is protected should he fall during a more violent seizure. December 14, 2015.

Jordyn is now in middle school. Since she was diagnosed at three months, her body and brain has endured a tremendous amount of stress and has not developed to allow her to speak, walk or use fine motor skills. December 14, 2015.

Vanessa lifts and guides her daughter Jordyn, who is almost as tall as she, out of her wheelchair to the scale to weigh her to make sure any weight changes are accounted for in the dosage. December 14, 2015.

Mother and daughter interlock fingers during a visit to Cook Children’s Hospital’s neurology clinic for a checkup with Dr. Perry, the lead physician on a drug study studying a seizure medication derived from cannabidiol, the non-psychoactive substance in marijuana. December 14, 2015.

Jordyn experienced a sharp dive in the number of seizures she was having after starting the cannabidiol drug trial. She went from having more than thirty a day to a few a week. Once the study is complete the participants will receive the drug for free forever.